Breakfast
Welcome
David Hellman, MD
Aliki Perroti Professor of Medicine
Vice Dean, Johns Hopkins Bayview Medical Center
Johns Hopkins University School of Medicine
Director, Department of Medicine
Johns Hopkins Bayview Medical Center
Introduction and Objectives
Clifton O. Bingham III, MD
Associate Professor of Medicine
Division of Rheumatology, Department of Medicine
Johns Hopkins University School of Medicine
Director, Johns Hopkins Arthritis Center
Director, Center for Patient-Centered Outcomes Research in Rheumatology
Patient’s Perspective of Research as a Research Partner
Amye Leong, MBA
International Spokesperson
UN Bone and Joint Decade
President, Healthy Motivations
Santa Barbara, California
PCOR: Revolutionizing Care or Old Win in New Bottles?
Susan Bartlett, PhD
Associate Professor of Medicine
McGill University
Adjunct Associate Professor of Medicine
Division of Rheumatology
Johns Hopkins University School of Medicine
Canadian Representative, PROMIS international
Considerations in Qualitative and Mixed Methods
Katherine Clegg-Smith, PhD
Associate Professor of Medicine
Bloomberg School of Public Health
Director, Center for Qualitative Studies
What is Important to RA Patients? Engaging Patients in Research and Guidelines: An International Perspective in Rheumatology
Laure Gossec, MD, PhD
Professor of Rheumatology
Paris 06 University and Pitié-Salpétrière Hospital
Paris, France
Co-Chair, Patient Stream, OMERACT
Engaging Patients as Stakeholders
Suzanne Schrandt, JD
Deputy Director of Patient Engagement
Patient Centered Outcomes Research Institute (PCORI)
Panel Discussion
Break
Integration of PROs in Clinical Settings
Clifton O. Bingham III, MD
Associate Professor of Medicine
Division of Rheumatology, Department of Medicine
Johns Hopkins University School of Medicine
Director, Johns Hopkins Arthritis Center
Director, Center for Patient-Centered Outcomes Research in Rheumatology
How PCOR is Subverting the Clinical and Research Enterprise
Albert Wu, MD, MPH, FACP
Professor of Health Policy and Management and Medicine
Director, Center for Health Services & Outcomes Research
Johns Hopkins Bloomberg School of Public Health
PCOR Changes in Medical Education and Clinical Care
Cynthia Rand, PhD
Professor of Medicine
Associate Dean for Faculty
Johns Hopkins University School of Medicine
Deputy Director of Patient-Centered Care
Department of Medicine
Johns Hopkins Bayview Medical Center
Panel Discussion—Hopkins Involvement in PCOR
Clair Snyder, PhD
Associate Professor of Medicine
Johns Hopkins University School of Medicine and
Johns Hopkins Bloomberg School of Public Health
Rebecca Asklakson, MD PhD
Assistant Professor of Medicine
Department of Anesthesiology and Critical Care Medicine
Johns Hopkins University School of Medicine
Wendy Bennett, MD MPH
Assistant Professor of Medicine
Division of General Internal Medicine
Johns Hopkins University School of Medicine
Welch Center for Prevention, Epidemiology, and Clinical Research
Cynthia Boyd, MD, MPH
Associate Professor of Medicine
Division of Geriatrics
Johns Hopkins University School of Medicine
Department of Health Policy and Management
Johns Hopkins Center on Aging and Health
Johns Hopkins Bloomberg School of Public Health
Diana Gumas
Director of Clinical and Clinical Research
Information Systems, Johns Hopkins Medicine
Developing PCOR Infrastructure and Training Needs
Susan Bartlett, PhD
Associate Professor of Medicine
McGill University
Adjunct Associate Professor of Medicine
Division of Rheumatology
Johns Hopkins University School of Medicine
Canadian Representative, PROMIS international
Clifton O. Bingham III, MD
Associate Professor of Medicine
Division of Rheumatology, Department of Medicine
Johns Hopkins University School of Medicine
Director, Johns Hopkins Arthritis Center
Director, Center for Patient-Centered Outcomes Research in Rheumatology
